I finally understand that every passing moment is precious.
"How did this happen?" You would think that after living with ALS for
nine years, I would/should have learned this lesson already. But, it took the
stopping of my heart, the failure of my lungs to work with the Bi-pap I depended
upon for years, CPR, a trip to the hospital, ICU for six days, and a trache to
open my eyes (lungs) to a second chance at life. I don't remember much of all
of that… I do remember that I woke up to my greatest fear—no voice! At first, I
was terrified, but gradually with the love and care given by my wife, son,
friends, doctors and nurses, I was able to put aside the fear and accept this
new stage in my life. It wasn't easy, and each day is presenting new
challenges, but the unconditional love I am blessed with gives me strength to
go on. Love written on the faces and gestures of my loved ones…Now, I only pray
that I use this newly given time wisely and with a grateful heart.
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Sorry that you had a close call but glad you made it to a new normal. For the first time in 3 years I did not spend half of November in the hospital. December is usually not much better but so far so great! I had an in home hands on demonstration of the Jaco robotic arm and it was AWESOME! I placed my order and I should have it by February. Hang tough hero! Barry dx 06/11/01
ReplyDeleteHi Rick!I'm sorry that you now have an additional challenge to overcome. But I am glad that it has given you a new perspective on life. I am one of Barry's caregivers.(He also commented on here.) I hope that you continue to inspire others with your positive outlook. I know it isn't easy keeping that persona all the time.But for what it's worth,guys like you & Barry teach people like me to be more appreciative of the little things in life.So thank you! And keep up the good work....you truly make a difference! :) Your new friend, Becky
ReplyDeleteAn inspiration. Thank you! Lee
ReplyDeleteAn inspiration. Thank you! Lee
ReplyDelete